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Children, youth and families Healthcare providers
CHEO’s Down Syndrome Clinic provides care to children and youth with a confirmed diagnosis of Down Syndrome through karyotype testing. Our clinic ensures the medical needs of patients meets the Canadian Down Syndrome Medical Guidelines. Our clinic may also recommend and briefly address certain aspects of developmental, behavioural, and educational issues.
About our team
Our team consists of four pediatricians, two nurses and a dietician.
Information for children, youth, and families
| How can I make an appointment? |
| All patients must be referred by a physician or nurse practitioner. We will contact you to book an appointment if the referral has been accepted. Please expect up to a 6 month wait prior to your child’s first appointment. |
| Before your appointment |
| Before your Down Syndrome Clinic appointment, the nurse case manager will contact you to review a questionnaire. Your child will also need to have blood work done prior to or on the same day as their appointment with us. Please bring these to your appointment:
Please sign up for a MyChart account prior to your first visit. Our scheduling team will contact you by phone to schedule an appointment. If something changes and you need to reschedule your appointment, please tell us at least 24-48 hours (about 2 days) in advance if you cannot make it by calling 613-737-7600 x2352. No shows or frequent cancellations may result in discharge from the service. |
| What to expect during your appointment |
| You will be seen by one of our clinic pediatricians who will discuss any questions or concerns you have. We will update your family physician after the appointment so they can continue to meet all of your child's health and wellness needs. Our clinic does not provide primary care - please keep in close contact with your regular doctor while being followed by our clinic. |
| Who should I contact if I am worried or have questions? |
| Call 911 for any emergency.
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Looking for more resources or supports on Down Syndrome?
Visit our Down Syndrome resources and support page to find helpful websites, local contacts, videos and more.
Information for healthcare providers
Make a referral
Our clinic is now accepting e-referrals with Ocean!
If you’re already on Ocean, look us up via your account by searching "CHEO".
If you don’t yet have an Ocean account, no problem - signing up is free.
You can also continue to submit referrals by faxing a referral form to the clinic using the contact information below.
Referral criteria and eligibility |
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Other information Please contact us at the numbers below. Those with a confirmed Down Syndrome diagnosis will be contacted by a Nurse Coordinator. Our coordinator will answer your questions, set up an appointment and refer you to other health and developmental services if needed. |
Contact us
If you have any questions or concerns about your child's health, contact us. These numbers are monitored Monday to Friday from 8:00am-4:00pm. If no one is available to take a call, leave a message that includes your name and your relationship to the patient, the name and date of birth of the patient, the name of the doctor and details on where and when you can be reached. We will get back to you within 3-5 business days.
Phone and fax numbers
CHEO Down Syndrome Clinic: 613-737-7600, extension 4105 or 2352
To reach specific members of the Down Syndrome Clinic team:
Phone:
- Nurse coordinator: extension 2825
- Dietician: extension 3375
- Administrative office: extension 2664
Fax:
- 613-738-4878
Our phone numbers and fax number are not emergency lines. For emergencies, contact your family physician, Telehealth Ontario or 911.