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Breakthrough parenting for children with special needs: raising the bar of expectations
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Winter, Judy. -- San Francisco, CA: Jossey-Bass, 2006.
This book provides detailed information on how to let go of the “perfect-baby” dream, face and resolve grief, avoid the no-false-hope syndrome, access early intervention services, and avoid the use of limiting and outdated labels. Also included are specific guidelines for working with professionals, understanding the law and inclusion, planning for the future, and insightful interviews.
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Children with complex and continuing health needs: the experiences of children, families and care staff
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Hewitt-Taylor, Jaqui -- London: Jessica Kingsley Publishers, 2008.
The author focuses on the real life experiences of children and their families and provides valuable insight into living with complex and continuing health needs.
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Children with disabilities
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Baltimore, MD: Paul H. Brookes, 2007.
This comprehensive text covers all of the developmental, clinical, educational, family, and intervention issues, and also includes student-friendly features: chapter objectives, vivid vignettes, a glossary of key terms, more than 200 helpful illustrations, and extensive appendices about cognitive testing and screening, medications, resources, syndromes, and inborn errors of metabolism.
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Day by day: children tell their journeys of faith and determination living with a sick brother or sister
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Frisbee, Christine. -- New York: Frisbee Foundation Publishing, 2008.
This book gives siblings who have a sick brother or sister a voice, allowing them to tell their own stories. The purpose of this book is to bring understanding and hope to families with a seriously ill child, as well as to educate others about how to take a difficult situation and use it to make you stronger and wiser.
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Deedah [DVD]
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May, Brooke. -- [Savannah, GA]: Deedah Productions, 2009.
Deedah is the honest, heart-warming and often humorous account of a seven-year old girl's relationship with her six-year old brother, who has Down syndrome - or as he calls it 'up' syndrome.
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Don't call me special: a first look at disability
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Thomas, Pat -- Hauppauge, NY: Barron's Educational Series, 2002.
This delightful picture book explores questions and concerns about physical disabilities in a simple and reassuring way. Younger children can find out about individual disabilities, special equipment that is available to help the disabled, and how people of all ages can deal with disabilities and live happy and full lives.
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Exceptional children - ordinary schools: getting the education you want for your special needs child
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Forman, Norm -- Markham, ON: Fitzhenry & Whiteside, 2004.
This book addresses the educational concerns and needs of children with learning disabilities and other special needs. It's a comprehensive guide for parents seeking to improve the lives of their child's education, as well as resources on how to become a successful advocate for their needs.
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Extraordinary friends
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Rogers, Fred -- New York: Putnam, c2000.
How do you get to know someone in a wheelchair? Sometimes it's hard to know where to begin. In his characteristically wise and gentle way, Mister Rogers challenges the stereotypes that often plague children with special needs and celebrates six children who are extraordinary friends.
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Far from the tree: parents, children and the search for identity
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Solomon, Andrew. -- New York: Scribner, 2012.
Solomon's startling proposition is that diversity is what unites us all. He writes about families coping with deafness, dwarfism, Down syndrome, autism, schizophrenia, multiple severe disabilities, with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, as are the triumphs of love Solomon documents in every chapter.
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Head cases: stories of brain injury and its aftermath
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Mason, Michael Paul. -- New York: Farrar, Straus and Giroux, 2008.
In this book, we encounter survivors of brain injuries as they struggle to map and make sense of the new worlds they inhabit. Underlying each of these survivors' stories is an exploration of the brain and its mysteries.
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I openers: parents ask questions about sexuality and children with developmental disabilities
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Hingsburger, Dave -- Vancouver, B.C. Family Support Institute Press, 1993.
This book offers insightful and intelligent answers to real-life questions from parents, with the goal of teaching children with developmental disabilities about sexuality. The author has worked extensively with people with disabilities and he treats this subject not only with sensitivity but with good humour.
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Janet's got her period: planning for self-care in menstruation for girls and young women with special learning needs
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Gray, Judi. -- Carlton, Australia: Social Biology Resources Centre, 1990.
This resource kit informs women and young girls with intellectual or physical disabilities about menstrual management and self-care. Using graphic depictions, the DVD and accompanying booklet give step-by-step instructions on what young women should know about menstruation.
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Just one of the kids: raising a resilient family when one of your children has a physical disability
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Harris Kriegsman, Kay; Palmer, Sara. -- Baltimore: The Johns Hopkins University Press, 2013.
Parents of children with physical disabilities can help them develop the skills needed to meet life’s challenges and launch into independence. Parents, building on that foundation and acknowledging each person’s contributions, interests, and aspirations, create an inclusive and resilient family.
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More than a mom: living a full and balanced life when your child has special needs
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Baskin, Amy -- Bethesda, MD: Woodbine House, 2006.
A book for mothers whose children have developmental or physical disabilities, mental health or learning issues, or chronic medical conditions. This book is designed to help you cope, adjust, and find the inspiration to make your daily life easier and more fulfilling.
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Not what I expected: help and hope for parents of atypical children
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Eichenstein, Rita. -- New York: Penguin Group, 2015.
As diagnosis rates continue to rise for autism, ADHD, learning disabilities, and other developmental differences, parents face a maze of medical, psychological, and educational choices -- and a great deal of emotional stress. With an emphasis on practical solutions, the author walks readers through the five stages of acceptance and helps them understand their own emotional experience, so that they can embrace their child with acceptance, compassion, and joy.
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Oh brother!: growing up with a special needs sibling
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Hale, Natalie -- Washington, DC: Magination Press, 2004.
An eleven-year-old girl finds ways to handle the unique challenges presented by her thirteen-year-old mentally disabled brother by looking for his good qualities and taking the rest in stride.
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Optimizing care for young children with special health care needs: knowledge and strategies for navigating the system
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Baltimore, MD: Paul Brookes Publishing, 2007.
Ideal for anyone who directly assists or works with families of children with special health care needs and for parents themselves, this book explains how to effectively and efficiently manage the health care system and optimize care for children with any kind of special health care need.
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Ordinary families, special children: a systems approach to childhood disability
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Seligman, Milton -- New York: The Guilford Press 2007.
This book offers a multi-systems perspective on childhood disability and its effects on family life. It discusses theory and research as well as practical intervention strategies and techniques.
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Owning it: stories about teens with disabilities
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Gallo, Donald R. -- Cambridge, MA: Candlewick Press, 2010.
Presents ten stories of teenagers facing all of the usual challenges of school, parents, boyfriends and girlfriends, plus the additional complications that come with having a physical or psychological disability.
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Parenting children with health issues: essential tools, tips, and tactics for raising kids with chronic illness, medical conditions and special healthcare needs
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Cline, Foster. -- Golden, CO: Love & Logic Press, 2007.
Offers parents of children with chronic health issues practical strategies and suggestions to help them cope with their child's condition and the constant physical and emotional challenges they may face.
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Parenting your complex child: become a powerful advocate for the autistic, Down syndrome, PDD, bipolar, and other special-needs child
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Morgan, Peggy Lou -- New York, NY: AMACOM, 2006.
This guide presents a practical system for combining information and observations about your child into a cohesive plan for his or her daily life, and for documenting and communicating the child's individual needs in a way that guarantees attention and action. The book offers the professional and personal wisdom the author has gained through a life of advocating for special needs children, including her own.
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Raising a kid with special needs: the complete Canadian guide
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Bendall, Lisa -- Toronto: Key Porter Books Ltd, 2008.
This is a comprehensive and friendly guide for families who are raising a special needs child. In clear, friendly language, the author presents a step-by- step guide to getting past the ‘special needs' and on to the business of living. From health advice to school savvy, from financial tips to advocacy know-how, from focusing on family to facing the future, this book will guide parents through all aspects of parenting a child who has physical, developmental, sensory, or learning disabilities.
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Raising and educating a deaf child
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Marschark, Marc -- New York: Oxford University Press, 2007.
This second edition offers a readable, comprehensive summary of everything a parent or teacher would want to know about raising and educating a deaf child. It covers topics ranging from what it means to be deaf to the many ways that the environments of home and school can influence a deaf child's chances for success in academic and social circles. The new edition provides expanded coverage of cochlear implants, spoken language, mental health, and educational issues relating to deaf children enrolled in integrated and separate settings.
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Raising NLD superstars: what families with nonverbal learning disabilities need to know about nurturing confident, competent kids
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Whitney, Rondalyn Varney -- New York, 2004.
Raising NLD Superstars is essential reading for all those who come in to contact with children with non-verbal learning disorders (NLD). Instead of insisting upon the one size fits all model of intervention, the author focuses on the individual nature of NLD children and offers practical, adaptable advice that will help them find their place both in the family and in wider social groups.
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Steps to independence: teaching everyday skills to children with special needs
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Baker, Bruce L. -- Baltimore, MD: Paul H. Brookes Publishing, 2004.
Proven strategies for teaching life skills to children from age 3 through young adulthood. Provides step-by-step guide for teaching seven types of skills.
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Understanding motor skills in children with Dyspraxia, ADHD, Autism, and other learning disabilities: a guide to improving coordination
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Kurtz, Lisa A. -- London: Jessica Kingsley Publishers, 2008.
The author explains how to recognize normal and abnormal motor development, when and how to seek help and includes specific teaching strategies to help children with coordination difficulties succeed in the classroom, playground and home.
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The ultimate guide to sex and disability: for all of us who live with disabilities, chronic pain, and illness
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Kaufman, Miriam -- San Francisco, CA:Cleis Press, 2003.
This complete sex guide is for people who live with disabilities, pain, illness, or chronic conditions. Useful for absolutely everyone, regardless of age, gender, or sexual orientation, the book addresses a wide range of disabilities — from chronic fatigue, back pain, and asthma to spinal cord injury, hearing and visual impairment, multiple sclerosis, and more. It provides readers with encouragement, support, and all the information they need to create a sex life that works for them.
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Yoga for the special child: a therapeutic approach for infants and children with Down Syndrome, cerebral palsy, and learning disabilities
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Sumar, Sonia -- Sarasota, FL: Special Yoga Publication, 1998.
An easy-to-follow program for parents, educators, yoga teachers, and health care professionals which includes: a step-by-step, integrated system of yoga poses designed to increase cognitive and motor skills in children with learning and developmental disabilities. Specialized breathing exercises and relaxation techniques to improve concentration and reduce hyperactivity.
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What I would tell you: one mother's adventure with medical fragility
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Keon, Julie. -- Victoria, BC: Four Pillar Books, 2017.
The author shares her thoughts on rekindling the joys of life for weary parents raising a child with special needs. This book is not only a beacon of hope for parents like Julie but is also a valuable guide to the professionals and helpers who care for children and families living with special needs and medical fragility
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