Connective Tissue Diseases

The connective tissue diseases affect the blood vessels, skin, muscles and eyes, as well as other body systems. There are many different types of Connective Tissue diseases. Below you will find resources to help you to better understand and cope with and/or support someone with a connective tissue disease.

Websites

Patient support resources

Aortic Disease booklet — Ottawa Heart Institute
Marfan Foundation
Loeys Dietz Syndrome Foundation Canada
The Ehlers-Danlos Society
Genetic Aortic Disorders Association Canada (GADA)
Arthritis Society - Online learning modules

Treating frequent headaches with pain relievers - Choosing Wisely Canada
Treating migraine headaches - Choosing Wisely Canada

Handouts on Joint Hypermobility

Joint Hypermobility - CHEO
Joint hypermobility information booklet - Versus Arthritis (UK)

Local contacts and EDS clinics

SickKids EDS Clinic (for children and youth)
GoodHope Ehlers-Danlos Syndrome Clinic — University Health Network in Toronto

Disclaimer

These resources are for educational purposes only. If you have any questions, ask your health-care provider.