Shelby and Rick are the proud parents of a sweet little baby girl named Olivia. When Olivia was born, in those same moments of incredible joy Shelby and Rick’s world was shaken when they found out she had the diagnosis of Zellweger Syndrome, a rare and severely life limiting metabolic disorder. After two weeks at CHEO, Shelby and Rick were told that they needed to prepare themselves to say goodbye to Olivia. They were placed in the hands of the medical professionals and support staff at CHEO and Roger Neilson House where they spent three days as a family making precious memories.
Watch to learn more about how Olivia’s family was able to move forward while honouring her memory
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